We believe teething may be the cause of the balance issues Layla has been experiencing this summer which has resulted in so many falls and booboos on a daily basis. I know that sounds crazy, but it is amazing how certain things can link to other things. The teething always caused ear trouble when Layla was younger and now with her two year molars trying to cut through it seems to be effecting the inner ear and causing horrible balance issues.
This has caused us so much stress, worry and heartache trying to keep our baby girl from getting hurt … [Read More]
Layla has always done so good, don’t get me wrong, she has her struggles, her ups and downs, and her good days and bad days, but overall she has done extremely well with the cards she was dealt. I know we are not just lucky but blessed. However, lately she has been falling down a lot. We thought she fell a lot before, but now it has gotten really bad. It started around the time of her birthday 2 months ago, and at first I thought it was her feet, which were turning in even worse than ever causing her … [Read More]
Dearest Readers and Fellow Liss Families,
For those of you who have read and followed our blog, Life with Liss
over the years, first I just want to say thank you. The support, the
comments, the messages, all of it means so much to me, to us. Second,
I know I haven’t been posting or updating it like I should for a while
now and for that I apologize. I feel like in a way I have let you all
down, as well as myself, my family, and Layla. LWL was created with
the goal to help others traveling the … [Read More]
So, Layla is in fact teething again at 4 years old…..
We had taken her to the dentist a few months back when the dentist informed us that she was actually just cutting her two year molars, this may even be why she has been grinding her teeth so badly. And I do mean badly, all of her back teeth have been grinded down almost to the gums and she has basically even grinded a hole in the side of one tooth. The dentist said it was okay since the grinding wasn’t hurting her, it was just kind of hpw … [Read More]
We have had a very rough week. I know my fellow Liss parents understand when I say we have our good days and our bad days. Unfortunately Layla has been having really bad days for a whole week now. I know it’s hard on her and it breaks my heart. Its also hard on us and has got my nerves beyond wrecked, my anxiety raging, and my heart heavy.
She always falls a lot, like most toddlers plus a little extra, but she has been falling so much more lately. She will literally just start stumbling a fall over while … [Read More]
Did I mention that we have been potty training again? We started last summer when Layla turned two. At first she seemed to take right to it but after a couple weeks she refused. Eventually we realized that she just wasn’t ready and the more we tried to push it the more she would resist. So we give her time and waited until she was ready.
Now we are at it again and she has been doing great using the big girl potty (the grown up potty, not a training potty!) She doesn’t go every time she is on it, … [Read More]
In a couple of days we have an appointment at the Cincinnati Children’s Hospital for our daughter. As you know she has trouble eating, swallowing and talking, as well as many developmental delays which seem to be common with Lissencephaly. This has not only led to her being underweight and having a very slow growth rate, but she also often gets choked when she eats. Unfortunately every day we are afraid of this, but with this appointment we have a bit of new hope. With this appointment our daughter will not only have a swallow study done, but also an … [Read More]
Posted in Health, Layla
Tagged 35 months, aspiration, eating, Lissencephaly, oral skills, speech therapy, swallow study, swallow study for children with special needs, swallowing, toddler swallow study, videofluroscopic
Layla’s speech has been a very long and hard road with slow to no progress at times it seems. However as a Mommy I have never lost faith and I can always see her potential. Lately she has had another burst in her progress and is expanding her speech and oral skills so much. She is more vocal than ever, getting out some words rand0mly. The words are not clear, but understandable to Mommy and Daddy, and they always come sporadically, which is typical for her diagnosis of Speech Apraxia. Some of the words we have heard from her … [Read More]
I don’t think I’ve ever told you this, but Layla absolutely loves football, as well as pizza! I guess it’s because I would always watch it with her while Daddy was at work. She would sit in her bouncy chair and watch so intently, kicking and bouncing away.
So of course, tonight we are watching the Superbowl, and she is taking in every minute of it. She actually waves me out of her way if I am blocking the TV. And every time they show the fans she claps right along with them. I really wish I had a little … [Read More]
It has been a rough week. We spent Sunday night in the hospital with Layla…
She had been completely fine all day, maybe a little more tired than usual, but that’s not out of the ordinary for Layla. She went to bed a little early, slept for a couple of hours and then woke up and decided it was play time again. We played, she was fine but getting extremely tired, very fast. Then I could see it in her face, I could tell she didn’t feel good, more than just being tired and ready for bed. And … [Read More]