*/----Google----/*
  • Welcome to Life with Lissencephaly!

    Welcome, and thank you for visiting Life with Lissencephaly. I hope that you will find something useful, inspiring, or even humorous on our blog. I love to help make others' lives easier, give them a smile, or make people laugh. Feel free to browse around, share with friends and family, leave us a comment, or even send us your story. If you enjoy our blog, please take a moment to click the banner below to vote for us in the Top Mommy Blogs. All you have to do is click! Vote for me @ Top Mommy Blogs - Mom Blog Directory

Teething May Be The Cause For Our Recent Falling & Balance Issues

We believe teething may be the cause of the balance issues Layla has been experiencing this summer which has resulted in so many falls and booboos on a daily basis. I know that sounds crazy, but it is amazing how certain things can link to other things. The teething always caused ear trouble when Layla was younger and now with her two year molars trying to cut through it seems to be effecting the inner ear and causing horrible balance issues.

This has caused us so much stress, worry and heartache trying to keep our baby girl from getting hurt … [Read More]

Posted in Layla | Tagged , , , , , | Leave a comment

Falling down a lot more than usual and Mommy is getting very worried…

Life with Lissencephaly Blog - Miss Layla

Layla has always done so good, don’t get me wrong, she has her struggles, her ups and downs, and her good days and bad days, but overall she has done extremely well with the cards she was dealt. I know we are not just lucky but blessed. However, lately she has been falling down a lot. We thought she fell a lot before, but now it has gotten really bad. It started around the time of her birthday 2 months ago, and at first I thought it was her feet, which were turning in even worse than ever causing her … [Read More]

Posted in Layla | Tagged , , , | Leave a comment

To My Dearest Readers & Supporters

Dearest Readers and Fellow Liss Families,

For those of you who have read and followed our blog, Life with Liss
over the years, first I just want to say thank you. The support, the
comments, the messages, all of it means so much to me, to us. Second,
I know I haven’t been posting or updating it like I should for a while
now and for that I apologize. I feel like in a way I have let you all
down, as well as myself, my family, and Layla. LWL was created with
the goal to help others traveling the … [Read More]

Posted in Uncategorized | Tagged | 2 Responses

Teething again… Really?!

So, Layla is in fact teething again at 4 years old…..

We had taken her to the dentist a few months back when the dentist informed us that she was actually just cutting her two year molars, this may even be why she has been grinding her teeth so badly. And I do mean badly, all of her back teeth have been grinded down almost to the gums and she has basically even grinded a hole in the side of one tooth. The dentist said it was okay since the grinding wasn’t hurting her, it was just kind of hpw … [Read More]

Posted in Uncategorized | Tagged , , , | Leave a comment

How one of our bad days turned into a bad week and ended with a head injury…

Life with Lissencephaly

We have had a very rough week. I know my fellow Liss parents understand when I say we have our good days and our bad days. Unfortunately Layla has been having really bad days for a whole week now. I know it’s hard on her and it breaks my heart. Its also hard on us and has got my nerves beyond wrecked, my anxiety raging, and my heart heavy.

She always falls a lot, like most toddlers plus a little extra, but she has been falling so much more lately. She will literally just start stumbling a fall over while … [Read More]

Posted in Layla | Tagged , , , | Leave a comment

Potty Training & Big Girl Pull Ups, We’re At It Again!

Did I mention that we have been potty training again? We started last summer when Layla turned two. At first she seemed to take right to it but after a couple weeks she refused. Eventually we realized that she just wasn’t ready and the more we tried to push it the more she would resist. So we give her time and waited until she was ready.

Now we are at it again and she has been doing great using the big girl potty (the grown up potty, not a training potty!) She doesn’t go every time she is on it, … [Read More]

Posted in Layla, Milestones | Tagged , , , , , , | Leave a comment

The Swallow Study – What It Is and Why It’s Important

In a couple of days we have an appointment at the Cincinnati Children’s Hospital for our daughter. As you know she has  trouble eating, swallowing and talking, as well as many developmental delays which seem to be common with Lissencephaly. This has not only led to her being underweight and having a very slow growth rate, but she also often gets choked when she eats. Unfortunately every day we are afraid of this, but with this appointment we have a bit of new hope. With this appointment our daughter will not only have a swallow study done, but also an … [Read More]

Posted in Health, Layla | Tagged , , , , , , , , , , | 1 Response

Speech Progress at 32 months with Lissencephaly

Life with Lissencephaly - Layla at 32 Months

Life with Lissencephaly - Layla at 32 MonthsLayla’s speech has been a very long and hard road with slow to no progress at times it seems. However as a Mommy I have never lost faith and I can always see her potential. Lately she has had another burst in her progress and is expanding her speech and oral skills so much. She is more vocal than ever, getting out some words rand0mly. The words are not clear, but understandable to Mommy and Daddy, and they always come sporadically, which is typical for her diagnosis of Speech Apraxia. Some of the words we have heard from her … [Read More]

Posted in Layla | Tagged , , , , , , | Leave a comment

Watching the Superbowl and Eating Pizza!

I don’t think I’ve ever told you this, but Layla absolutely loves football, as well as pizza! I guess it’s because I would always watch it with her while Daddy was at work. She would sit in her bouncy chair and watch so intently, kicking and bouncing away.

So of course, tonight we are watching the Superbowl, and she is taking in every minute of it. She actually waves me out of her way if I am blocking the TV. And every time they show the fans she claps right along with them. I really wish I had a little … [Read More]

Posted in Layla | Tagged , , , , , | Leave a comment

The Dangers of Choking with Lissencephaly make for a Long Night at the Hospital

It has been a rough week. We spent Sunday night in the hospital with Layla…

What Happened…

She had been completely fine all day, maybe a little more tired than usual, but that’s not out of the ordinary for Layla. She went to bed a little early, slept for a couple of hours and then woke up and decided it was play time again. We played, she was fine but getting extremely tired, very fast. Then I could see it in her face, I could tell she didn’t feel good, more than just being tired and ready for bed. And … [Read More]

Posted in Layla, Uncategorized | Tagged , , , , | Leave a comment
  • Follow & Connect

    LWL on Facebook LWL on Twitter Life with Lissencephaly Community LWL RSS Feed
  • Inspiration

    Being good is commendable, but only when it is combined with doing good is it useful.

  • Donate

    If you are able to and would like to make a donation you can do so by clicking the button below. All donations are made securely through PayPal (and you do not have to have PayPal yourself to do this.) Big or small, it doesn't matter, it is greatly appreciated.
  • Categories

  • Blogs I Love

  • Support LWL by Voting

    Vote For Us @ Top Mommy Blogs
  • Archives

  • Sponsors

    ProTherapySupplies.com - Free Shipping! Sponsor LWL
  • Grab our button

    Life with Lissencephaly
  • Special Needs Books


Fatal error: Call to undefined function comicpress_copyright() in /home/content/47/9188847/html/wp-content/themes/LWLv2/footer.php on line 86